This Information Leaflet is aimed at giving parents very brief information at this very sensitive time.

For Parents of a New Born Baby with 22qDS

 Guidance:

Clinical pathway for babies who screen positive for SCID

A description of the process for babies who are screen positive for severe combined immunodeficiency (SCID) following routine NHS newborn blood spot (NBS) screening and are referred into diagnostic services.

Immunology services and teams can use this information to make sure that the babies who need diagnostic testing for SCID are referred and tested in the correct timescales and consistently.

https://www.gov.uk/government/publications/clinical-pathway-for-babies-who-screen-positive-for-scid/clinical-pathway-for-babies-who-screen-positive-for-scid